Legal notice
This notice explains who is responsible for this platform, what it is for, and the terms that govern its use.
Site owner
Pompe Journey Navigator is a platform run by:
Fundación de Neurociencias
Tax ID (CIF): G74177643
Registration number: 1183SND
Contact: admin@fneurociencias.org
Institutional website: https://fneurociencias.org
Purpose of the platform
Pompe Journey Navigator provides informational and educational support to people with Pompe disease and their caregivers: a guided journey, resources, training materials and a conversational assistant for general questions. The platform is not a medical device and does not provide diagnosis or treatment services.
Medical notice
This platform is for educational use only. It does not replace professional medical advice, diagnosis or treatment. If you have any concerns about your health, always consult your medical team.
Intellectual property
The text, design, training materials and other content on the platform are owned by Fundación de Neurociencias or used under licence. You may view and use them for your personal information; reproducing, distributing or commercially exploiting them without prior authorisation is not permitted.
Links and third-party services
Some sections link to or embed services provided by third parties, such as the clinical trials search tool. Fundación de Neurociencias does not control this external content and is not responsible for its availability, accuracy, or the policies of the provider offering it.
Applicable law
This legal notice is governed by Spanish law. Any dispute arising from access to or use of the platform will be subject to Spanish regulations and to the competent Spanish courts.
Last reviewed: July 2026